User:Dubbin/Huntington external links

Note: please discuss at User_talk:Dubbin/Huntington_external_links or Talk:Huntington's disease.

International and national support organizations

edit

Major online 'trans-national' resources for lay readers

edit
  • HOPES project - Stanford University's collaborative and highly respected HOPES project
  • HDBuzz - HD research news written by scientists in plain language; funded by the major lay organizations and their main source of research news. 10 languages.
  • HD Drug Works - a reliable source of news about current treatments and planned trials
  • HD Lighthouse - a popular community-led site offering advice and support. This may be too forum-led to merit inclusion
  • Predictive testing for HD - reliable information for people considering a predictive genetic test Too granular?
  • Our HD Space - reliable information about HD for young people Too granular?

Major research organizations

edit