Lily: A Longitudinal View of Life With Down Syndrome
Directed byElizabeth Grace, Lily's mother
Written byElizabeth Grace
Produced byElizabeth Grace
StarringLily
Distributed byDavidson Films
Release dates
1978
1988
1997
Running time
43 min.
CountryUnited States
LanguageEnglish

Lily: A Longitudinal View of Life With Down Syndrome ia a three-part documentary that follows Lily, an individual with Down syndrome. The series shows her life over a period of 30 years, during which Lily attends elementary school, graduates from high school, and eventually lives independently.

Lily: A Story About A Girl Like Me

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Released in 1978, this is the first part in the series. Lily is documented in her third grade class and at home. During this time period, mentally challenged children were not normally in public schools. This part in the series shows her adjusting to the differences she faces in the real world.

Lily: A Sequel

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Released in 1988, the second part of the series gives viewers a chance to see Lily's development. The camera follows the twenty-year old as she graduates from high school as a class marshall and moves into a group home. She has a job at a restaurant and proves to be very adaptable.

Lily at Thirty

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Released in 1997, the final installation of the series shows Lily as a fully independent woman. She has moved into her own apartment and has a job at a grocery store. Viewers are able to see her day-to-day life and how she has grown into her own person.

How Down Syndrome Affects Learning

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Children with Down syndrome mature much slower than those not affected [1]. However, research has shown that Down syndrome-affected children (and adults) are still able to learn [2]. When a study was done to compare the rate of learning between regular children and those with Down syndrome, after two years those with Down syndrome were able to read at the same rate as the normal children[3] . Despite the research, a number of adults today with Down syndrome never had the chance to learn to read[4] . Another study found, when comparing normal children to those with Down syndrome, that the affected children showed promise of increasing their fine motor skills just as much as the children not affected[5]. Inclusion in normal classes has proved beneficial for both nondisabled and children with Down syndrome by helping to give both groups positive attitudes toward one another and in turn reduce the predjudice against the disabled [6].

Themes

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Independence
Lily learns to live on her own. After graduating, she moves into a group home and eventually into her own apartment as part of a independent living program [7]. Lily seems to constantly strive toward her independence throughout the series. While in the group home, she says that while they are “like a family” she is eager to have her own space. Lily mentions that she can’t wait to see what it’s like in the “big world”. Once she finally moves into her own place the audience can sense that she has reached her goal. The journey she takes to living on her own is filled with obstacles, yet she faces each one without fear. By moving into her own apartment, Lily is able to live as a normal citizen despite her differences.

Letting go
Lily's mother constantly expresses that it is hard for her to let Lily be on her own. Going to elementary school, moving into the group home, and moving into her own apartment are all times when Lily's mother has to force herself to let go and give Lily the independence she wants.

Adjusting to the world around you/ dealing with differences
The filming began in 1978, when children were quickly placed into institutions for lifelong care, as opposed to having a normal family life [8]. Lily was “a pioneer for mainstreaming” and her story proves that the mentally challenged are fully capable of learning, living, and thriving on their own. The film gives insights to the full life possible for the mentally disabled (Davidson Films). The National Institute of Child Health and Develpment states that inclusion has become "more common over the past decade"[9], proving that Lily started a movement that has grown.

Stereotypes
Lily breaks the mold of some people's concept of individuals with Down syndrome. She holds a job and is an important member of her community. She is able to live on her own and do everything a regular member of society can do. By inviting veiwers into the details of her everyday life, she proves that she is no different than anyone else.

Special Thanks

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Tamalpais High School, Corte Madera House, Marin Association for Retarded Citizens, Gail Silva and FAF

Awards

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Lily: A Story About A Girl Like Me won the CINE Golden Eagle Award in 1978.

References

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  1. ^ Johnson, Paul (2005). Detroit: Gale. pp. 369–375. {{cite book}}: Missing or empty |title= (help)
  2. ^ Johnson, Paul (2005). Detroit: Gale. pp. 369–375. {{cite book}}: Missing or empty |title= (help)
  3. ^ Byrne, Angela (december 2002). British Journal of Educational Psychology. 72 (4): 513, 17. doi:10.1348/00070990260377497. PMID 12495564. {{cite journal}}: Check date values in: |date= (help); Missing or empty |title= (help); Unknown parameter |coauthors= ignored (|author= suggested) (help)CS1 maint: date and year (link)
  4. ^ Byrne, Angela (december 2002). British Journal of Educational Psychology. 72 (4): 513, 17. doi:10.1348/00070990260377497. PMID 12495564. {{cite journal}}: Check date values in: |date= (help); Missing or empty |title= (help); Unknown parameter |coauthors= ignored (|author= suggested) (help)CS1 maint: date and year (link)
  5. ^ Bird, Elizabeth Kay-Raining (April 2008). Journal of Speech, Language & Hearing Research. 1 (2): 436–450. {{cite journal}}: Missing or empty |title= (help); Unknown parameter |coauthors= ignored (|author= suggested) (help)CS1 maint: date and year (link)
  6. ^ Sirlopú, David (2008). Journal of Applied Social Psychology. 38 (11): 2710–2736. doi:10.1111/j.1559-1816.2008.00411.x. {{cite journal}}: Missing or empty |title= (help); Unknown parameter |coauthors= ignored (|author= suggested) (help); Unknown parameter |month= ignored (help)
  7. ^ "Lily: A Longitudinal View of Life with Down Syndrome". Retrieved 31 October 2010.
  8. ^ Johnson, Paul (2005). Detroit: Gale. pp. 369–375. {{cite book}}: Missing or empty |title= (help)
  9. ^ "Facts About Down Syndrome". Retrieved 31 October 2010.


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http://www.ndss.org/
http://www.nads.org/
http://www.youtube.com/watch?v=jKplWaIJAZg