Huntington's Disease Association
|Focus||Care and support for people affected by Huntington's disease|
|England and Wales|
The HDA was founded in 1986 and is based in Liverpool. It supports a network of regional care advisors who offer care and support to people with and at risk of Huntington's disease and their families. The HDA also has a research programme that supports scientific and social research into HD. It has worked to establish and support a network of multidisciplinary clinics for HD patients in the UK.
The charity was instrumental in the 2010 launch of an All-Party Parliamentary Group for Huntington’s disease in the UK Parliament, chaired by Lord Walton of Detchant, and 2010 research revealing that the prevalence of HD is much higher than previously thought.
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